Jul 012013

Well, finally! We have internet. Two weeks without service was much too long. Both our computers are in need of serious updates. Oh my! I’m not sure what the problem is with the internet the park provides but it’s still not working. I finally broke down and added internet back to our phone account. It’s not Andretti speed but it’s connected. Better than what we had before…. which was nothing.

There’s nothing new since I last posted. It’s still hot. The beast is still living large in my system. Bastard.

I saw the neurologist today. He’s putting me on Ampyra. Do any of you out there take it? Does it help? I don’t know much about it except that it’s for walking. I need to do some research … and now that I’m connected…

My MRI shows very little MS progression over the past 2 years… woot! I feel like hell but as long as there’s no new damage I’ll continue to deal. I found a  super duper cooling vest I’m going to save my pennies for. It’s one used by firefighters and first responders. It recharges  without a freezer too. It’s a Swede Mesh Cooling Vest. Hopefully I will be able to get it very soon!!

That’s all for now. My brain is mush.


Being an adult is like looking both ways before you cross the street and then getting hit by an airplane.

  5 Responses to “We Have Lift Off”

  1. I’ve heard many positives about Ampyra. Glad your service is back.

  2. Good luck with the new medication AND the cooling vest.

  3. Welcome back! As for Ampyra, I’ve mostly heard great things. I’m the only one I know that had a bad experience with it.

  4. Sorry, had more to say but at that exact moment, my daughter’s ride arrived. SO I have been taking Ampyra for about 3 years now, and although I do joke when people ask where my cane is (used it for about 3 yrs straight) and my response to their question, are you on a new med? I say, no, I got a divorce, and a LOT can be credited to reduction in STRESS, BUT the reality is, I do think that Ampyra had a big part of my walking better. I keep meaning to write about that drug on my blog, after all, I really think I could be their poster child, but things have been going so well with the Tecfidera (and it’s the one that everyone is emailing me and asking about since it IS so new and sounds like others are having problems) that I keep forgetting. BUT I would have to say that I would encourage you to think about it. I don’t recall whether there are possible side-effects but know that I don’t/didn’t have any. Although with me it seems it’s either none or big time in that arena. Tysabri, had an allergic reaction (which is rare) and went into Anaphylaxis shock. SO there may be down-sides to consider, but wanted to through my two cents into the hat.

    Meg @ bbhwithms.com

  5. OMG….I LOVE Ampyra!!!!!!

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