Oct 272010

i went back to work today…ugh.
my head was pounding…unbearably. my journey to work involves pit stops on a normal day…i leave home and go to a sub-station to pick up my work car. this morning, i got in said work car, laid the seat down and had to sit there for a bit to relieve some pounding… then i drove to my office about 20 minutes away… before i got out of the car i laid the seat back and sat for a bit to relieve the pounding… finally made it into my office and began working… i managed to make it an hour before i had to lay on the floor. thank goodness most of my morning was reviewing documents so i could just print them out and lay on the floor…

then i had a meeting this afternoon…. get into work car and drive to meeting site…i thought i was going to vomit from the pounding so i pulled onto the shoulder on two occassions… no vomit, back on the road… i arrived at the meeting destination and laid the seat flat and sat for a few to relieve the pounding…

the meeting was 1 1/2 hours long… upstairs…about 200 yards from my car…. can you say ugh?

finally! the day ended…. i drove to my car….got into it…laid the seat flat and sat for about 20 minutes to relieve the pounding…then i drove home… walked in the door and flopped on the bed… and here i remain…. ugh.

i called the lab that did my puncture…i wanted to know how long this is going to last….the guy says “well you can come in for a blood patch”, um, no thanks! that’s putting ANOTHER needle in my back…i won’t go into the details, it’s gross….

so here i lay… working on my  ever so neglected school work, facebooking, and of course blogging…. would you expect anything less of me? thought not…


the neurologist called me this morning… seems they have already gotten the results from my spinal fluid testing back… and i most conclusively have MS…. i knew that i had it… but you know… the mri’s were “inconclusive” so somewhere in the back of my mind there was this little shimmering, glittery, glimmer of hope that my messy mind was fucking with me…. wrong…. all that hope is now dashed away. at least i know for sure absolutely what i’m dealing with.

coach and i have an appointment with the neuro next week. we are supposed to bring a list of all our questions… and we are going to discuss medications and other treatment options…. shall i volunteer to bring the adult sparkling beverages to that party?

Being an adult is like looking both ways before you cross the street and then getting hit by an airplane.

  13 Responses to “tuesday updates….”

  1. It is warming to see your positive attitude through your post and comments …
    Hope, optimism and good attitude is the key to betterment …
    You go girl !!!

    Take care.

    • i think you are right… have to stay positive about it… otherwise i could just curl up in a ball on the bed and get lost in self-pity… and that does nothing for me or anyone else ha!

  2. honestly, that sounds even better! something good & strong… I think the occasion calls for it

  3. >i thought some sparkling beverages would be a nice touch to the day…. may as well make it fun ha

  4. The heck with sparkling beverages…I think that an expensive as hell single malt scotch might be in order…

  5. Wow! That is one sucky day. Sorry.

    I hope you can find something that helps. And I’m still praying that you heal quickly from that test.

  6. Wow, I have to commend you for your courage. I guess it’s a good thing that they have now determined it is MS, now you can start treatment and hopefully have a relatively normal life.

    • i am so grateful to have a definitive answer…and really am looking forward to treatments…i hate sitting and doing nothing for myself knowing this is slowly eating away at me

  7. Oh, sounds like a nasty day. So sorry. You were very brave going back to work. Hope things improve for you tomorrow.

    I’m just sayin….

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