Neuropathic pain is the pits….the black hole of pain. It’s random and shocking and makes no sense at all….
Back in June, my pain levels shot up to about an 8. Normally, on a day-to-day basis, my level is 2-3…3 being a tough day. That’s my normal though… pain level of 2…always. So when it shot up to about an 8 (with gusts up to 9), I was quite uncomfortable… I’m using my nice language.
I was concerned but figured it was stress, heat, blah blah… we were getting ready to go on vacation. I had all my annual plan reviews and such to get done. I was taking care of loose ends at work. We were getting excited…and stressed. I assumed the pain was up because of all that & it surely would subside. Surely…it would. Subside. Eventually. Yes?
For about 5 weeks the pain hovered between 7 & 9 – constantly. I managed it pretty well the first few weeks but after that it was just too much. I have no pain meds. Don’t like them. Ibuprofen is all I have… and Tiger Balm.
When we returned from vacation I went to the neurologist. She’s great. She prescribed Cymbalta. And you know…. it worked! Within 2 days my pain was down to 2! Hallelujah! The only negative is that my personality has flattened out a bit…. that’s the only way I know to describe it. I am known for my bubbles, my gusto… the way I teach and present is full of life. And that’s gone. But so is the pain For about 1/2 a minute I debated pain relief vs bubbles…. pain relief won.
So a new medication is added to my cabinet. I’m okay with that though.
The TN is still with me today. It goes from mild to through the roof, mild and through the roof again. At least I’m getting a few short breaks from the shoot myself in the head pain. I’ve seen 2 neurologists in the past 2 days… yes, I have 2 of them now. They both believe an exacerbation is on the horizon for me. And they both want to to infuse Solu-Medrol (I’m okay with that) with me as an inpatient (not okay with that). I keep telling them I can do my own infusions. Explained the last time… self-infused…did fine. They ain’t goin for it though.
All I can hope for is that the 3 of us are wrong…no relapse looming. No relapse. No relapse.
I just don’t have time for that nonsense LOL
I’m done bitching now.
Here’s a few photos I took for my daughter’s cousin. She asked me to do some shots for her graduation party table presentation….