4 days later we still don’t know how to come to terms with any of this.
Don’t know what to do.
Don’t know where to turn.
Don’t know what to do (oh wait, I said that already)
Today is supposed to be my MRI and then back to the neurologist’s office. I am hoping against hope that we can start working on a treatment plan. At least then maybe we can feel like we are doing something. Just sitting and doing NOTHING is very frustrating. Is it just eating away at me as I sit here and do nothing? Steadily getting worse…. while I do nothing. I hate this part. I know it’s just how things go but I don’t like it.
Maybe when there is a treatment plan we can start getting answers. Maybe then we can start looking towards the future a bit. Maybe then we can start coming to terms with it. All my lab work was posted last night on my patient portal – and thank you for small things – it was all normal! My liver enzymes were what I was most concerned about…they are good which means any medication will be okay for now. And my white blood cell count was in normal ranges too.
We spent the day with family and friends yesterday. That always helps. It was nice to see everyone… it was the first time my kiddo and my dad have seen me since this started. I hope it wasn’t too shocking for them. Kiddo said she was prepared for worse than what she saw. I haven’t spoken with dad since we left.
Speaking of the dad, he is dealing with his own medical issues right now so this is a double whammy for him. He will be okay – I have faith. I just hate that he’s got me on his plate right now to be worried and anxious about.