Sep 182013
 

I stayed home from work yesterday and slept. A lot. I needed to do that.

I’ve been battling with a cold for about 10 days now and it’s taking a toll on my body. I can’t believe it’s lasted this long. Over the past 3 years, since MS came along, my immune system has done a great job at winning any and all battles against viruses and bacteria. On average, a cold would last about 3 days.

Speaking of MS, today is the 3rd anniversary of the big one. That relapse that let me know something was wrong. I sorta knew for a long time that things weren’t right but never could pin point what it might be. I was dreading cancer and some other big things but as well all know, it turned out to be a chronic progressive thing.

Do you count your MS anniversary as the date you had that big relapse sending you into the tailspin that is MS… or do you count it as the day you received the official diagnosis? For me, it’s the relapse…my diagnosis came on October 28th.

As I look back over the last 3 years, I’m not that much worse for the wear. There are things that have joined me but not stopped me… slowed me down, yes…stopped me, not completely. I feel very fortunate. In these 3 years I’ve had 2 substantial relapses which is following the average relapse timeline. “They” say one big one every 18 months no matter what your medication of choice is.

I’m overdo. February of 2012 was the last one. It’s time. I’m not waiting for it or paranoid about it. I just know it’s coming… eventually.

I’m tolerating the Tecfidera well. It’s causing no problem in my world… except still forgetting the second dose. I manage to take it but usually not on time. I’ll get better at it. I have to establish a better routine so it becomes second nature.

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Dad had his last (hopefully ever) chemo treatment. As awful as this journey is, and scary, it has been interesting to be a part of it. We all read about people receiving chemo for the cancer. But I have never read about the things Dad has experienced. Those intimate things that people don’t talk about I suppose. He’s had some weirdo things happen that I can’t really mention… yeah, I’m perpetuating the lack of information. Some of the symptoms have been sort of intimate so it’s not my place to tell publicly.

One thing I can mention though is fingernails, and I assume toenails. He has a red line at the tip of his fingernails meaning the tissue holding the nails on their beds is dying. He will lose his fingernails…. maybe only partially, maybe all the way. I don’t think I’ve ever read anywhere about people losing nails. Hair, yes. And he has. Nails, nope, never read about that anywhere.

At any rate, he is cancer free. He is almost done. In about 12 days he will begin healing. He has 12 days of feeling like shit to go through and then he’s done.

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So the storm called Ingrid didn’t do much to us. She brought us lots of rain… last I read about 5 inches +/-, no significant flooding or wind. Whew!

But

There is another tropical system developing in the exact same place Ingrid did. Headed our way as of right now. There are many days between now & potential landfall so lots can change. Preparations continue in anticipation of the next one.

Being an adult is like looking both ways before you cross the street and then getting hit by an airplane.

  5 Responses to “MS Anniversary”

  1. Sherri, I can hardly believe that it’s been 3 years since we met on Twitter, I think, or was it some place else. I remember well when you got your diagnosis.

  2. I found you! Somehow, I lost you from my feed a long time ago. I’ve wondered about you. I’ve even looked for you. Today, while looking through some comments on an old post of mine, I saw your name. I wondered how you are and if you were still blogging. Now I know. I’m so glad to have found you again.

    I’m glad you’re finding your way. And that you haven’t relapsed. Fingers crossed for you.

    I’m sorry for the struggle you have been going through with your dad. I hope he can return to good health soon. You will both be in my prayers today.

    Welcome back to my life, old friend.

  3. My father’s cancer was too advanced so he didn’t have chemo – but yes, from what I have seen it is awful. So glad that he is now cancer free.

    And really happy that you are having a much needed day off.

  4. The cure for cancer is almost worse than the disease itself. It is awful to watch a loved on go through chemo.

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