Nov 092010
 

>there are so many ideas rolling around in my head. i have ideas about what i would love to do…but i don’t know how to get there. i don’t know how to do these things and get paid. we rely on my income as it is…so i can’t afford to make any less… and i can’t afford to lose my insurance…

i am enrolled in school. i’m almost 1/2 done with my degree… but is it really worth it? financially it’s going to kill me. student loans…. ugh. and what happens when i become disabled and have payments to make on these student loans? the average MSer is disabled about 5 years after diagnosis… so… i don’t know what to do.

i sit on my ideas… i ponder on them…. i research them… i know what i want to do…

Being an adult is like looking both ways before you cross the street and then getting hit by an airplane.

  12 Responses to “>forks in my road”

  1. >my degree plan is taking me down a path in my current field…which is too stressful for me now… and i' m afraid that when the proverbial shit hits the fan, i won't be physically able to respond… not a good thing… i am going to talk with my academic advisor…get some career counseling and look at some government programs offered to people with disabilities – they help with career matching and retraining for the new career…exciting and scary all at the same time!

  2. >this is very good advice kj! i am trying to decide on the best path to take… i won't leave my job/insurance until something else is in place .. i love guaranteed income… i hate the idea of freelance or contract… so unpredictable and i can't afford that now… as you well know…do you have plans for retirement? what will be your passion? i worry about not working… i know i won't get bored..but i worry about what it is i will do with my time… i have this thing about wanting to feel useful and productive… i wish there was a manual for this…

  3. >i am determined to find a way to make my hopes work out…but at the same time i am going to take my time… i have time on my side… and i plan to start small… building as i go… learning as i go…in the past i have ignored my intuitions…my heart & soul.. my gut… and the funny thing is that i somehow end up on the path that i denied… i know i will end up right where i should be…

  4. >See if you can find someone to advise you on the best way to do what you want and still make the money you need. Is your degree something that will help with what you want to do? If not, rethink the direction your education is going. Good luck. Doing what you want is very important.

  5. Hi Sherri,

    MS tends to go into remission or stabilize, then to relapse without warning. 80-85 percent of all people start out with RRMS. The average person with RRMS has little impairment even 10 years after diagnosis. Of these people 80 % still function well and without significant disability after 20 years. No one really knows how or when a certain person with MS will become disabled. MS is a very unpredictable disease.

    The best advice I ever received regarding my future with MS…Expect the best, but prepare for the worst. Making sure your finances are in order, is one of the first things you should address.

    I don’t know what type of work you do, or what you are getting your degree in, but my advice would be to eventually steer your career towards work that you can do with minimal physical effort. Another plus would be a job where you can work from home, if disability becomes an issue in your future.

    I’d love to agree with some of the other comments as to “follow your heart”, but with MS you really have to ” follow your brain”…

    Have you joined a local support group for MS? Often times talking with people that are in the same situation can offer insight.

    Cheers,
    Karen

  6. Best wishes at this contemplative time. My only advice would be to take as much time as you need to make your decisions. Sometimes I get super stressed thinking I have to make every decision right now. Most decisions can wait a bit while you weigh your options, your dreams, and say a little prayer for inspiration.

    After all of that, trust your heart. I’m not saying follow your dream because maybe that’s not what your heart says. I am suggesting that you listen to that place in your soul that you have come to trust with the difficult things of life. Even if the decision doesn’t make sense. Even if you can’t explain it or defend it. Our heart are so wise and too often we talk ourselves out of what they tell us.

    • i am determined to find a way to make my hopes work out…but at the same time i am going to take my time… i have time on my side… and i plan to start small… building as i go… learning as i go…

      in the past i have ignored my intuitions…my heart & soul.. my gut… and the funny thing is that i somehow end up on the path that i denied… i know i will end up right where i should be…

  7. Follow your heart… It is not always the easiest path… but if you know what you want then you’ll discover how to make it all work out.

  8. It’s impossible to not be concerned about your future. I do the same, almost daily. Keep up the activity you love, which is your schooling, but try to find less expensive avenues for obtaining your education (possible?). And if yo have other career aspirations, start working on it now, while you are gainfully employed.

    I’m planning to retire in 2012, which is about 10 years premature from my original goal. It’s a tough decision, and I will be walking away from a good salary. But I know the Man upstairs has a plan — for you, for me, and for everyone who suffers a disability/illness at an early age. We can do this thing called life in a very big way!

    • this is very good advice kj! i am trying to decide on the best path to take… i won’t leave my job/insurance until something else is in place .. i love guaranteed income… i hate the idea of freelance or contract… so unpredictable and i can’t afford that now… as you well know…

      do you have plans for retirement? what will be your passion? i worry about not working… i know i won’t get bored..but i worry about what it is i will do with my time… i have this thing about wanting to feel useful and productive…

      i wish there was a manual for this…

  9. See if you can find someone to advise you on the best way to do what you want and still make the money you need. Is your degree something that will help with what you want to do? If not, rethink the direction your education is going.

    Good luck. Doing what you want is very important.

    • my degree plan is taking me down a path in my current field…which is too stressful for me now… and i’ m afraid that when the proverbial shit hits the fan, i won’t be physically able to respond… not a good thing…

      i am going to talk with my academic advisor…get some career counseling and look at some government programs offered to people with disabilities – they help with career matching and retraining for the new career…

      exciting and scary all at the same time!

Sorry, the comment form is closed at this time.

%d bloggers like this: