i have a kick-ass neuro… i truly do…
and his nurses, office staff, and well pretty much everyone i’ve dealt with this past 18 months over there has been absolutely fantastic to me….
i love that i go to his office and hear that i have a low-burden of disease (although i hate to find out what a medium-burden of disease is gonna be like)… he always has a way of making me feel much better about the condition of the condition i’m dealing with 🙂
he talks to me… not at me… and we don’t just talk about me… we talk about him too… now i fancy myself a pretty smart girl – with a dash of cognitive mishaps thrown in – and i would have to suspect that much of our conversation is him assessing my mental abilities… he’s listening to my speech
patters patterns, word choices, stops/starts, connection of thoughts…. i’m guessing here but i would think that conversation about whatever topic comes up would be a great indicator about the health of my ol thinking cap….
so today’s visit…. went well considering i was sitting in a neurologist’s office with pictures of my brain, neck and back projected up on the big screens…. sorry Dr. Cain, but i would rather not have had to know you or come to see you…. but i’m so glad that i have you in my corner 🙂
yes there is new activity… no it’s not as bad as many others… yes it’s kicking my ass right now… but i continue to trudge on through… i most always refuse the cane…. don’t frown at me… i don’t want to give in too early… i’m afraid if i give in too early that i will just go on giving in and head down that spiral to the fetal position in blackened rooms… i’m not wanting to go there
i will continue on with the current treatment choices… Copaxone injection each and every friggin day… blasted shit… i will continue using Adderall to give me the energy to make it through the day (mostly), i will continue on the mega doses of vitamin D, the b-complex, and a bit o verapimil in the winter months to help with the Raynaud’s….
more mri’s? nah… not right now… it’s so cool that doc lets me decide if i want to do the mri or not… he agrees with me that it’s money out of pocket for something that we already pretty much know… and the biggie is that it’s not going to change anything… i have ms, i will get worse, i will keep taking meds (for now)…. all this doesn’t mean that when the big one comes i will refuse mri’s and such… i will certainly go through with the testing for the biggies….
this relapse is here… it’s affecting me certainly… but i’m managing… i’m living… i’m working… and overall, i’m doing alright… just a few new sensations to deal with and a bit o pain that hopefully will subside over the next few months…
the only new thing we’re doing… something i haven’t done before…. IV solu-medrol for a few days… look out world – sherri’s fixin to be all hopped up and energized…. not so much looking forward to it though ha! hopefully i won’t gain 158.9 pounds in the process….
no hospital either… my infusions will be done in my home… now how cool is that? won’t interfere with work, soccer, football, or anything else… so they say….
so that’s about it… i am here waiting to hear from the infusion center to get the details worked out… oh, and i have ms… yeah…..
p.s. it’s sorta nice having a day off in the middle of the week, even if it wasn’t planned and it’s costing me
p.s.s doc mentioned a new drug coming around the bend that he is hopeful about…. Dimethyl Fumarate or BG-12 as it’s called…. gonna go do some reading